June 6, 2009

My mother called today and gave me a reminder. She said that people still ask her about Madison and why I am not writing in the blog. I was actually surprised because I guess in my own little world it feels like people just move on with their own busy lives and we are left in our own daily life. But, once again I was proven wrong. I am so touched that people still remember, care and follow her journey. Hopefully this summer will be a time of new awakenings and I will have lots to blog about.

The end of the year ended for the kids and Madison graduated from her PPCD program. It was a very bittersweet day for all of us. Pictures will be posted today! Her teachers really feel that madison has made a lot of progress over the past 3 years and especially the past 6 months. We did get a "diagnosis" of seizures in madison, but I still am not 100% sure that is what they are. She was put on a very low dose of Neurontin and the doctor said it was so small, we probably wouldn't see any change. But, we have.....they are basically gone. The thing is, over the past 3 years, she has gone through what I like to call phases of different activity. She will do things that look like seizures for a few months and then just stop. I don't know if it's the neurons making their connections or not, but it seems to be a more positive thing. However, we are keeping her on the low dose of neurontin for now. Ultimately, I would like to get her off of it again but the neurologist is going to fight me on that.

Other than the seizures, Madison has been doing really well. Her level of awareness seems to be better and her trunk and head support are getting better. It's a slow process, but we are going in the right direction!

B+ for Madison!

 

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Comments

  • Monday, June 08, 2009 7:52 PM Kathleen wrote:
    Thank God for a good report. Keep improving little princess.

    Love Kathleen
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  • Tuesday, June 09, 2009 6:47 PM Sylvia wrote:
    we will never forget Madison....always in our prayers
    Reply to this
  • Saturday, June 20, 2009 6:14 AM Kim Cyr wrote:
    I'm so thankful for the good report and for your Mom, too. We are always checking the blog for new reports and keep you all in our daily prayers! Just like Sylvia, we will never forget! Your love for each other and for God, and watching God's work through Madison's progress are so incredibly inspirational. I don't know if you will ever truly know how many lives you continue to touch and inspire.
    Reply to this
  • Saturday, June 20, 2009 7:39 AM Stacey wrote:
    Thank you for the update Gina! I think of Madison often and check the blog fairly regularly. I completely agree with the earlier two -- we will never forget!

    I'm so happy to hear that the teachers and therapists think Madison's been making progress; that must have been music to your ears.

    Good luck on the next adventure and update when you can.

    Hugs,
    Stacey
    Reply to this
  • Sunday, July 05, 2009 9:32 PM Cindy wrote:
    still praying, and checking for updates often!
    Reply to this
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